Industry News
MDFA Launches Australia's First Comprehensive Macular Disease Support Service
Macular Disease Foundation Australia (MDFA), the national peak body for macular disease, has launched Eye Connect - Australia's first comprehensive support service for people living with macular disease.
Macular disease, which includes age-related macular degeneration (AMD) and diabetic retinopathy, is estimated to affect 1.9 million Australians. However, studies show that only 56% of patients recall receiving a clear diagnosis, and 58% did not receive any lifestyle modification advice from their eye care professional.
To address this gap, MDFA has developed the free Eye Connect service, which provides people living with macular disease access to evidence-based support between clinical appointments. Initially focused on AMD, the service will soon expand to cover other macular conditions.
Key Features of Eye Connect:
- Health Information: Patients receive information about their macular disease and non-clinical support services to manage their condition confidently.
- Practical Advice: Tips and guidance on nutrition, daily living with low vision, transportation, and more.
- Emotional Support: Help managing the worries and concerns around a macular disease diagnosis, as well as connections to peer support.
"We know that people with macular disease want more practical and emotional support to manage their condition at home," said Dr. Kathy Chapman, CEO of MDFA. "Eye Connect provides evidence-based resources to empower patients and complement the care they receive from eye care professionals."
The launch of Eye Connect comes at a critical time, as the number of Australians with AMD is expected to reach 1.7 million by 2030. Diabetic retinopathy, another leading cause of vision loss, affects 1 in 3 Australians over 50 with diabetes.
"Offering tailored support to individual patients is a valuable addition to the services already provided by the Foundation," said Associate Professor Alex Hunyor, Chair of the MDFA Medical Committee.
Health professionals can refer patients to Eye Connect through the MDFA website, Oculo, or by calling 1800 111 709. Patients can also self-refer.